Search found 35 matches
- Mon Jan 11, 2021 5:38 am
- Forum: PSSD related research
- Topic: Looking for Dutch people
- Replies: 5
- Views: 1895
Re: Looking for Dutch people
Will fill it thanks ! I'm from Switzerland, can I still do it ?
- Thu Jan 07, 2021 6:49 pm
- Forum: PSSD related research
- Topic: PSSD in 2021 | Melcangi Study Info, Future Research and Activism
- Replies: 24
- Views: 25497
Re: PSSD in 2021 | Melcangi Study Info, Future Research and Activism
Almost 9400, almost there for Round 1
- Tue Jan 05, 2021 3:19 pm
- Forum: General
- Topic: IMPORTANT: MHRA requesting patient feedback about PAS as part of Expert Review - PARTICIPATE
- Replies: 2
- Views: 780
Re: IMPORTANT: MHRA requesting patient feedback about PAS as part of Expert Review - PARTICIPATE
I took accutane but like 15-17 years ago and have no idea if this could be linked with my PSSD now. Problems only started 20 months ago after 9 years of ADs.
- Mon Jan 04, 2021 5:49 pm
- Forum: General
- Topic: PFS / PSSD / PAS federation and Campaign to Raise Awareness for Rare Disease Day
- Replies: 15
- Views: 3002
Re: PFS / PSSD / PAS federation and Campaign to Raise Awareness for Rare Disease Day
I wrote down my story. Could anyone who is a native English speaker correct it? It’s not too long. I want to take part in this. Please guys let’s work together. I am sick of this condition without any future outlook for a serious research and treatment. Thanks a lot for writing down your story, thi...
- Sun Jan 03, 2021 6:27 am
- Forum: PSSD related research
- Topic: PSSD in 2021 | Melcangi Study Info, Future Research and Activism
- Replies: 24
- Views: 25497
Re: PSSD in 2021 | Melcangi Study Info, Future Research and Activism
Awesome posts, thanks for everything, looking forward to be able to help !!
- Fri Jan 01, 2021 6:09 pm
- Forum: General
- Topic: Which medical examens should I do ?
- Replies: 7
- Views: 1773
Re: Which medical examens should I do ?
Thank you very much ! Did you do some of these examens yourself ? You're from Paris I guess ? Je suis de Genève, j'ai fait quelques tests de mon côté. Tu as facebook ? On pourrait s'échanger des infos, je suis sur plusieurs groupes PSSD aussi etc ;) Je suis de marseille, et je me deplace à paris to...
- Fri Jan 01, 2021 1:43 pm
- Forum: General
- Topic: Which medical examens should I do ?
- Replies: 7
- Views: 1773
Re: Which medical examens should I do ?
You're from Paris I guess ? Je suis de Genève, j'ai fait quelques tests de mon côté. Tu as facebook ? On pourrait s'échanger des infos, je suis sur plusieurs groupes PSSD aussi etcTheParisian55 wrote: ↑Thu Dec 31, 2020 4:45 pm Thank you very much ! Did you do some of these examens yourself ?
- Tue Dec 29, 2020 3:14 am
- Forum: Treatments and experimentation
- Topic: Tribulus Terrestris for libido issues - PSSD
- Replies: 7
- Views: 2278
Re: Tribulus Terrestris for libido issues - PSSD
T.T did help my erection temporarily. But then fades.
- Sat Dec 26, 2020 2:11 pm
- Forum: PSSD related research
- Topic: Fundraising for research Prof. Roberto Cosimo Melcangi
- Replies: 46
- Views: 10819
Re: Fundraising for research Prof. Roberto Cosimo Melcangi
It’s showing anonymous now which is great, it showed my first and last name at first, not sure if it was a glitch or something or if the organiser of the fundraiser or someone managed to change it. Anyway it’s all good now! I’ll possibly donate more at a later date depending on a few things, I’ve a...
- Sat Dec 26, 2020 2:08 pm
- Forum: General
- Topic: PFS / PSSD / PAS federation and Campaign to Raise Awareness for Rare Disease Day
- Replies: 15
- Views: 3002
Re: PFS / PSSD / PAS federation and Campaign to Raise Awareness for Rare Disease Day
Thanks this is awesome, appreciate! I have a twitter account, don't really use it but could re-tweet everything you guys do, like I already did a bit in the past. Will create a Medium account. Will try to prepare something regarding my story even though english isn't my native language so it makes i...