Search found 17 matches

by glennchan
Sun Jan 21, 2024 8:52 pm
Forum: PSSD related research
Topic: I'm collecting data on treatments being tried for PSSD/PFS and how people have recovered
Replies: 0
Views: 1397

I'm collecting data on treatments being tried for PSSD/PFS and how people have recovered

Let’s collect data on what’s happening to PSSD/PFS patients even if you aren’t experimenting on yourself. I’ve collected data on other chronic illnesses (over 573 responses) and that has generated useful data regarding risky and promising treatments. Please help me do the same for PSSD. SURVEY LINK:...
by glennchan
Mon Jan 15, 2024 11:41 pm
Forum: General
Topic: New Facebook group for PSSD Clinical Resources & Support
Replies: 0
Views: 1853

New Facebook group for PSSD Clinical Resources & Support

https://www.facebook.com/groups/374389668427208/

One good thing about Facebook is that it's a way to reach more PSSD sufferers out there. (Though there's censorship and maybe some other issues.)
by glennchan
Sun Sep 17, 2023 6:06 pm
Forum: Activism
Topic: Wikipedia waged some kind of war on PSSD editors
Replies: 2
Views: 5172

Wikipedia waged some kind of war on PSSD editors

The old Wikipedia page for PSSD is here: https://en.wikipedia.org/w/index.php?title=Post-SSRI_sexual_dysfunction&oldid=1150073490 The current situation is that the page has been deleted and redirects to the SSRI article, where PSSD is just a stub. The editor who won the Wikipedia war doesn't see...
by glennchan
Sat Sep 16, 2023 9:16 pm
Forum: Activism
Topic: Fundraising for PSSD Research / Marketing
Replies: 2
Views: 2234

Re: Fundraising for PSSD Research / Marketing

Hey do you have any interest in getting Ghost's GWAS study (Genome project) completed? It can be a really cost effective way to do research when you have: A- Somebody with a track record of PSSD advocacy, so there's a reason to trust the researcher. B- Ghost works for free, so the money spent will r...
by glennchan
Sat Sep 16, 2023 9:10 pm
Forum: PSSD related research
Topic: German GPCR auto-antibody study on vax injury- what it means for PSSD
Replies: 0
Views: 5109

German GPCR auto-antibody study on vax injury- what it means for PSSD

https://forum.sickandabandoned.com/t/german-gpcr-auto-antibody-study-on-the-vax-injured-semmler-et-al/313/2 Semmler and colleagues (DOI:10.20944/preprints202309.0113.v1) argue that vax injured persons can be distinguished from vaccinated individuals based on: Higher levels of the cytokine IL-6 (or ...
by glennchan
Fri Aug 18, 2023 9:09 am
Forum: Activism
Topic: PSSD and vax injury awareness idea: join #MedSafetyWeek Nov 6-12 2023
Replies: 2
Views: 2254

Re: PSSD and vax injury awareness idea: join #MedSafetyWeek Nov 6-12 2023

A number of us have been trying to engage with the patient safety commissioner recently, so following this up with a barrage on twitter and other methods would be good. I'll try my best to encourage everyone to participate. I haven't been following that situation closely but... the patient safety c...
by glennchan
Wed Aug 16, 2023 12:18 pm
Forum: Activism
Topic: PSSD and vax injury awareness idea: join #MedSafetyWeek Nov 6-12 2023
Replies: 2
Views: 2254

PSSD and vax injury awareness idea: join #MedSafetyWeek Nov 6-12 2023

For Med Safety Week, we can hijack the hashtag to raise awareness about med side effects and the terrible care that patients receive. The UK safety commissioner (@PSCommissioner) did keep tabs on the patient-led #MedSafetyWeek campaign (she followed me on Twitter) so they are listening. In the end, ...
by glennchan
Fri Jul 28, 2023 12:06 pm
Forum: Treatments and experimentation
Topic: IVIG for PSSD - some anecdotes, how to get access
Replies: 0
Views: 5898

IVIG for PSSD - some anecdotes, how to get access

IVIG, or IntraVenous ImmunoGlobulins, is an immunomodulating therapy that has been used experimentally for various chronic illnesses such as Long COVID, post-vax, ME/CFS, and PSSD. There are patients, researchers, and clinicians that advocate for IVIG as a treatment for various chronic illnesses. H...