There is no way to raise €10m just like that, unless a member here is exceptionally wealthy and willing to donate such an amount. But that is not necessary. At the beginning five digits or low six digits can be enough. It is important to raise awareness of this condition and to establish it is real....

Nobody will be able to tell you that. You can only quantify the costs if you know every step of the way from today's almost complete lack of understanding to a full understanding of the condition. But if you knew the way already, you would already have that understanding. In science, taking a step c...

I would say all the very severe cases lose their depression and get the killing anhedonia and emotional numbness instead. That is what makes the whole life hell even if maybe possible to tolerate the loss of sexuality. Agreed. The cognitive side effects are crushing and debilitating. They are overs...

I would say all the very severe cases lose their depression and get the killing anhedonia and emotional numbness instead. That is what makes the whole life hell even if maybe possible to tolerate the loss of sexuality. That's true. Unfortunately, most people outside these communities will just call...

Sad to read. :( To prevent more tragedies it is important that victims of these drugs don't stay within the confines of forums like this one. It is important to speak up and organize. Report your side effects to the authorities, speak about your experience on YouTube, approach the media, approach do...

Hello everyone, Our sincere thanks to everyone who has already contributed to our survey! Over 100 people from the PSSD community have participated so far, which is a really good numbers and probably the largest existing data set for PSSD patients. We will soon no longer be accepting responses to th...

Absolutely. This problem will only be addressed if the authorities are aware of it. They can't be aware of it if the problem is not reported. It's the least everyone can do. Everyone can find their local pharmacovigilance agency here: https://www.propeciahelp.com/report-your-propecia-side-effects-to...

Yesterday, on Rare Disease Day 2021, we have launched PFS Network (www.pfsnetwork.org), an outreach-focused site that provides a clear information resource and a hub for the projects of the propeciahelp team, who form pfsnetwork. The site includes the following: - A professionally animated and voice...

Dear FinnishGuy96, I am sorry to read that another person is subject to these awful persistent drug side effects. Unfortunately, such persistent side effects from various drugs are under-appreciated, under-researched and under-reported. Please consider reporting your persistent side effects to the a...

There is no way to overcome this currently. First, we need to understand this condition better, before we can think about effective treatments.