Search found 48 matches

by KJP21
Thu Apr 28, 2022 3:40 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52045

Re: PSSD could be small fiber polyneuropathy

Hey all - so I kind of stopped posting here because I don't think the majority of people on this forum want to be productive. They are so fixated on finding a supplement to magically and suddenly reverse their condition, and the PFS lobby is really trying to wrap our condition up with theirs and foc...
by KJP21
Wed Feb 02, 2022 8:08 pm
Forum: Treatments and experimentation
Topic: PSSD for 3 years, corticosteroids temporarily cured all PSSD symptoms
Replies: 79
Views: 24407

Re: PSSD for 3 years, corticosteroids temporarily cured all PSSD symptoms

https://pubmed.ncbi.nlm.nih.gov/12838042/ Please actually READ this article. I have posted it before, but it didn’t get much attention. It says in very clear terms that antidepressants can permanently change the function on the HPG axis. It also says very clearly that the corticosterone response to...
by KJP21
Mon Jan 17, 2022 9:30 am
Forum: Speculations and hypotheses
Topic: Accutane and Autoimmunity - Clear Clues about PSSD
Replies: 1
Views: 2348

Accutane and Autoimmunity - Clear Clues about PSSD

Accutane withdrawal clearly linked to autoimmune trigger. https://pubmed.ncbi.nlm.nih.gov/28458939/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3531957/ https://www.latimes.com/nation/la-sci-accutane7-2009nov07-story.html?_amp=true Accutane is used to as immunosuppressant for Lupus https://pubmed.n...
by KJP21
Sun Jan 16, 2022 1:01 pm
Forum: General
Topic: Can anybody else “feel” the numbness in their pudendal nerve?
Replies: 0
Views: 503

Can anybody else “feel” the numbness in their pudendal nerve?

Do you feel like the numbness is more through the core of your penis than on the outside? Does it feel like there is numbness running up from the base of your penis up in to your spine? Does it feel like there is a blunting sensation running from around your bladder down to your penis? Does it feel ...
by KJP21
Sat Jan 15, 2022 2:00 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52045

Re: PSSD could be small fiber polyneuropathy

I don’t disagree with that statement. But that has not been your role or intention. Like I said, I’m done.
by KJP21
Sat Jan 15, 2022 1:53 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52045

Re: PSSD could be small fiber polyneuropathy

I think it’s very clear whom is the negative one. Look back at your posting history. Remember, you are the “realistic” one who is certain that no one will follow through and have SFN diagnosis done.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5999027/
by KJP21
Sat Jan 15, 2022 1:44 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52045

Re: PSSD could be small fiber polyneuropathy

You even conveniently ignored the positive proof by user Janie in this very thread! Just scroll back a few pages. People like you are why this forum and other online groups can’t and won’t be taken seriously. Anyway, I’m out of here. I have my diagnosis and have my treatment plan. It would have been...
by KJP21
Sat Jan 15, 2022 1:38 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52045

Re: PSSD could be small fiber polyneuropathy

Integra - what is your agenda? Negativity? Obfuscation? Maybe just enjoying spending your time on here and creating drama to maintain that? Why don’t you explain to the group how you ignored the 6 other individuals on this forum, Reddit, and Facebook and a few others on SA who tested positive for SF...
by KJP21
Fri Jan 14, 2022 10:44 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52045

Re: PSSD could be small fiber polyneuropathy

Dude shut up with the dysbiosis. I don’t know if you’re a scammer or just neurotic and out of control, but get off this thread! And, no, I don’t have dysbiosis. The tests have been done and I am clear. So there you go - your beloved internet theory is disproven by at least one. Mods, can I get some ...
by KJP21
Fri Jan 14, 2022 3:40 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52045

Re: PSSD could be small fiber polyneuropathy

While I appreciate your comment about the leaky gut, etc., my intention was to get people to explore and potentially receive a diagnosis for SFN, regardless of the pathway. So, I would really appreciate keeping this thread on topic. You may not see the value of receiving the evidence/diagnosis of SF...