The idea is simple: let’s use our social media profile pictures to raise awareness about the sick and abandoned. Whether it’s from Long COVID or SSRIs, I want to see chronic illness patients band together to raise awareness about what’s happening. Our illnesses are real and we deserve access to heal...

Reposted from https://forum.sickandabandoned.com/t/for-pssd-sufferers-heres-what-you-can-learn-from-long-haulers/134 ---- Hi, I collect survey data and published RCT on what works for treating COVID vaccine injury and Long COVID. The two most important compilations of data are here: Overview of RCT ...

Thanks!! I forgot about that site. I never really figured out how to use that site... like what does it think is effective for PSSD?

However, there's some useful stuff on there like the popularity of treatments.

I've been conducting patient surveys for vax injury (and Long COVID and ME/CFS). And thanks to David Healy's advocacy for both PSSD and vax injury, PSSD is on my radar. Back to survey research... one of the findings from that research is that chronic illness patients have weird reactions to drugs. I...

Queen's research project. - See Reddit thread. https://www.reddit.com/r/PSSD/comments/11apvol/queens_university_pssd_research_project_2023/ - Join via the Qualtrics survey. https://queensu.qualtrics.com/jfe/form/SV_4NnG8T2XJij1yZg David Healy recruiting for 2023 CCM project (CCM is a test for small ...

1 out of 5 twin pairs reported that one twin has PSSD/PFS and the other doesn't. This suggests that ~1-in-5 or more of all sufferers are experiencing PSSD/PFS mainly due to environmental factors and not genetics. Poll results below or at https://www.reddit.com/r/PSSD/comments/13v7tkl/identical_twins...

I've put up a resource hub at www.SickAndAbandoned.com to help connect people to resources, whether they have vax injury (like myself), Long COVID, ME/CFS, PSSD, etc. My interest in PSSD is because there is some overlap between PSSD and what I have (COVID vax injury), although the two conditions see...