We absolutely need the biopsy results. It would act as objective evidence. Can you imagine 100+ people presenting with verifiable SFN, all claiming that their symptoms started after discontinuation of an SSRI?

While I appreciate your detail and eloquence and agree with the tone you are taking, I must strongly disagree with your choice to suggest a likely link between the two disorders and your logic in doing so. A link between PFS and PSSD was first suggested by Healy who is in no way a reliable or profes...

Let's be realistic. The topic is interesting, but we will not recruit people with a biopsy. You are so negative. You say you are just skeptical, but in reality, you clearly come off as negative and potentially even depressed. I had someone privately message me and listed loss of smell as his sympto...

The tingling in the hands while on the drug is relevant to the extent that your nerve function (length dependent) was altered while on the med.

Without any sensory or skin related symptoms now, seems unlikely that you have small fiber neuropathy.

Can you elaborate which symptoms please? I think we are close to a breakthrough.

Healy is doing this for himself. Getting the EMA to recognize the condition via his petition gets him attention. If he truly cared about the condition, he would do some non-keyboard warrior research. How many people are in the NY or Boston area and would be willing to have the biopsies done if paid...

Healy is doing this for himself. Getting the EMA to recognize the condition via his petition gets him attention. If he truly cared about the condition, he would do some non-keyboard warrior research. How many people are in the NY or Boston area and would be willing to have the biopsies done if paid ...

Merkel nerves are a type of small fiber. They are unmyelinated too. So, yes, small fiber neuropathy can include damage to these nerves. The other poster may not have gotten proper benchmarks to his biopsies. Again, wouldn’t it be nice if we stopped chatting and had 50 or 100 people out of the thousa...

I was a top athlete and now have all the sexual cognitive and physical symptoms. Loss of muscle mass, gyno, etc and yes my hormones are optimal. Plenty of ppl with pssd report these too I really don't know how loss of muscle mass could be related to an immune reaction, but I guess it's possible. Wh...