Search found 48 matches

by KJP21
Mon Jan 10, 2022 6:52 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52720

Re: PSSD could be small fiber polyneuropathy

I’ve updated the thread title to what I changed it to originally. We can’t say that PSSD is likely to be anything without research. Please don’t change it again. Ok I won't change it, but I find it kind of weird that you guys allow other much more sensationalistic subjects like "I'm going to d...
by KJP21
Mon Jan 10, 2022 5:34 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52720

Re: PSSD could be small fiber polyneuropathy

i don't think that is true. i think most people test within range of total and free - especially if tested correct which is first thing in the morning before eating.
by KJP21
Mon Jan 10, 2022 5:12 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52720

Re: PSSD could be small fiber polyneuropathy

In my case, no. I would recommend that you get the following tests done independent of the neurologists who might be able to perform the small fiber biopsy. https://neuropathycommons.org/sites/default/files/Tests%20for%20SFN%20causes%2005-24-19.pdf Also, with regards to the theory of downstream issu...
by KJP21
Mon Jan 10, 2022 1:59 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52720

Re: PSSD could be small fiber polyneuropathy

Janie, would you please list your symptoms outside of sexual dysfunction, from most apparent to least? I'd really appreciate this.
by KJP21
Mon Jan 10, 2022 1:55 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52720

Re: PSSD could be small fiber polyneuropathy

Hi, I had biopsy on my ankle twice. It was both times just below the lower limit (number of nerves if I'm correct). The doctor concluded that in SFN cases numbers are much lower than lower limit... not that I fully agree. So it was kind of inconclusive. I'm a severe case with almost all symptoms of...
by KJP21
Mon Jan 10, 2022 1:48 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52720

Re: PSSD could be small fiber polyneuropathy

I would highly recommend not going to a neurologist with "Hey I took SSRIs and when I discontinued and got PSSD. You know about this right? This is real right? Can I get some skin biopsies?" Explain the full set of symptoms, focusing on the sensory ones, mention genital numbness, and kindl...
by KJP21
Mon Jan 10, 2022 12:53 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52720

Re: PSSD could be small fiber polyneuropathy

As I said, not all PSSD has to be the same. And not all sexual dysfunction during or after SSRIs have to be related to the SSRI. My understanding is that for the majority of sufferers, their symptoms appeared or became much worse (or were a different set of sexual dysfunction symptoms) after discont...
by KJP21
Mon Jan 10, 2022 12:31 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52720

Re: PSSD could be small fiber polyneuropathy

Actually, I have been told by a very reliable and successful attorney in the space that with a few dozen concluding biopsies/medical diagnoses, combined with anecdotal evidence of symptom onset after discontinuation, that the case would not be that hard at all. The biopsies provide objective evidenc...
by KJP21
Mon Jan 10, 2022 12:23 pm
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52720

Re: PSSD could be small fiber polyneuropathy

So that's an important thing to note, that I don't think the reasons here are so binary. In my case, while I had some light symptoms of PSSD, they were worsened by a bad case of the flu in late 2019 and then COVID 19 vaccines. My best guess, and I reiterate that this is a guess, is that once you tak...
by KJP21
Mon Jan 10, 2022 11:32 am
Forum: Speculations and hypotheses
Topic: PSSD could be small fiber polyneuropathy
Replies: 193
Views: 52720

Re: PSSD could be small fiber polyneuropathy

Then, at least we have a diagnosis. Maybe future treatments down the range, maybe legal recourse with objective evidence. I have already started my lawsuit. I don't understand your slight antagonism towards my post, etc. It's almost like you are upset that it might be something that you cannot cure/...