U.K. doctors

General discussions. Feel free to use this like a support group also.
Frog
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U.K. doctors

Unread post by Frog »

Hi guys,

Has anyone in the U.K. had any luck with finding a doctor, private or NHS, who has been willing to experiment with and prescribe drugs off label for PSSD? If you could share their name and your experience below that would be great.

I thought I’d start this thread as we don’t have any specialists on the RxISK list.
Frog
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Re: U.K. doctors

Unread post by Frog »

Bump
Breathdeep
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Re: U.K. doctors

Unread post by Breathdeep »

Frog wrote: Fri May 21, 2021 6:43 pm Hi guys,

Has anyone in the U.K. had any luck with finding a doctor, private or NHS, who has been willing to experiment with and prescribe drugs off label for PSSD? If you could share their name and your experience below that would be great.

I thought I’d start this thread as we don’t have any specialists on the RxISK list.
St Mary's hospital have a department that specialises in sexual dysfunction from medication. I saw Alison mears there and honestly wasn't to impressed. She fully acknowledges pssd and said to me I should give it time and see if I improve. However she also said ppl have benefited from cabergoline but wasn't willing to prescribe it herself. If your a woman that wants testosterone for sex Change that's ok but our quality of life apparently doesn't matter. It was nice to not have to explain what pssd is atleast. Her colleague Dr goldmeier is meant to be good to see but he's on long term leave and may not come back to work.
Did you find any others in uk(urologist, endocrinologist, neurologist etc?)
Sertraline 2018-2019
Fluoxetine November 2020
Symptoms low libido and ED
also muted emotions
helicopter
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Joined: Fri May 14, 2021 12:47 pm
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Re: U.K. doctors

Unread post by helicopter »

I had a phone call today with a doctor apparently i'm going to get referred to a specialist will let you know the details when I can.
Frog
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Re: U.K. doctors

Unread post by Frog »

Breathdeep wrote: Mon May 31, 2021 8:45 am
Frog wrote: Fri May 21, 2021 6:43 pm Hi guys,

Has anyone in the U.K. had any luck with finding a doctor, private or NHS, who has been willing to experiment with and prescribe drugs off label for PSSD? If you could share their name and your experience below that would be great.

I thought I’d start this thread as we don’t have any specialists on the RxISK list.
St Mary's hospital have a department that specialises in sexual dysfunction from medication. I saw Alison mears there and honestly wasn't to impressed. She fully acknowledges pssd and said to me I should give it time and see if I improve. However she also said ppl have benefited from cabergoline but wasn't willing to prescribe it herself. If your a woman that wants testosterone for sex Change that's ok but our quality of life apparently doesn't matter. It was nice to not have to explain what pssd is atleast. Her colleague Dr goldmeier is meant to be good to see but he's on long term leave and may not come back to work.
Did you find any others in uk(urologist, endocrinologist, neurologist etc?)
It’s annoying isn’t it! I’ve got an appointment with a neurologist soon who’s meant to be quite good so I’ll let you know what happens!
Frog
Posts: 292
Joined: Sun Feb 24, 2019 2:37 pm
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Re: U.K. doctors

Unread post by Frog »

helicopter wrote: Mon May 31, 2021 5:27 pm I had a phone call today with a doctor apparently i'm going to get referred to a specialist will let you know the details when I can.
That’s great, please do! If you could please see this thread too and get involved https://www.pssdforum.org/viewtopic.php?f=24&t=3386
Breathdeep
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Re: U.K. doctors

Unread post by Breathdeep »

Frog wrote: Mon May 31, 2021 5:44 pm
Breathdeep wrote: Mon May 31, 2021 8:45 am
Frog wrote: Fri May 21, 2021 6:43 pm Hi guys,

Has anyone in the U.K. had any luck with finding a doctor, private or NHS, who has been willing to experiment with and prescribe drugs off label for PSSD? If you could share their name and your experience below that would be great.

I thought I’d start this thread as we don’t have any specialists on the RxISK list.
St Mary's hospital have a department that specialises in sexual dysfunction from medication. I saw Alison mears there and honestly wasn't to impressed. She fully acknowledges pssd and said to me I should give it time and see if I improve. However she also said ppl have benefited from cabergoline but wasn't willing to prescribe it herself. If your a woman that wants testosterone for sex Change that's ok but our quality of life apparently doesn't matter. It was nice to not have to explain what pssd is atleast. Her colleague Dr goldmeier is meant to be good to see but he's on long term leave and may not come back to work.
Did you find any others in uk(urologist, endocrinologist, neurologist etc?)
It’s annoying isn’t it! I’ve got an appointment with a neurologist soon who’s meant to be quite good so I’ll let you know what happens!
Pls do. When are you seeing him and are you trying to get specific medication prescribed?
Sertraline 2018-2019
Fluoxetine November 2020
Symptoms low libido and ED
also muted emotions
Frog
Posts: 292
Joined: Sun Feb 24, 2019 2:37 pm
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Re: U.K. doctors

Unread post by Frog »

Breathdeep wrote: Mon May 31, 2021 6:42 pm
Frog wrote: Mon May 31, 2021 5:44 pm
Breathdeep wrote: Mon May 31, 2021 8:45 am

St Mary's hospital have a department that specialises in sexual dysfunction from medication. I saw Alison mears there and honestly wasn't to impressed. She fully acknowledges pssd and said to me I should give it time and see if I improve. However she also said ppl have benefited from cabergoline but wasn't willing to prescribe it herself. If your a woman that wants testosterone for sex Change that's ok but our quality of life apparently doesn't matter. It was nice to not have to explain what pssd is atleast. Her colleague Dr goldmeier is meant to be good to see but he's on long term leave and may not come back to work.
Did you find any others in uk(urologist, endocrinologist, neurologist etc?)
It’s annoying isn’t it! I’ve got an appointment with a neurologist soon who’s meant to be quite good so I’ll let you know what happens!
Pls do. When are you seeing him and are you trying to get specific medication prescribed?
Hopefully within the next few weeks. I’ve written to him first and asked he he’s willing to prescribe off label as I’ve got an idea of what I’d like to try. If he won’t then I’ll look elsewhere. It’s quite pricey so I’d rather find out first so I don’t have to pay if he won’t
Breathdeep
Posts: 107
Joined: Mon Apr 12, 2021 4:45 am
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Re: U.K. doctors

Unread post by Breathdeep »

Frog wrote: Mon May 31, 2021 7:25 pm
Breathdeep wrote: Mon May 31, 2021 6:42 pm
Frog wrote: Mon May 31, 2021 5:44 pm

It’s annoying isn’t it! I’ve got an appointment with a neurologist soon who’s meant to be quite good so I’ll let you know what happens!
Pls do. When are you seeing him and are you trying to get specific medication prescribed?
Hopefully within the next few weeks. I’ve written to him first and asked he he’s willing to prescribe off label as I’ve got an idea of what I’d like to try. If he won’t then I’ll look elsewhere. It’s quite pricey so I’d rather find out first so I don’t have to pay if he won’t
Good idea. What are you asking to get prescribed ?
I'm looking to try cabergoline or pramipexole in the future
Sertraline 2018-2019
Fluoxetine November 2020
Symptoms low libido and ED
also muted emotions
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Twentyoneguns
Posts: 115
Joined: Fri Mar 17, 2017 1:45 pm
Location: UK
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Re: U.K. doctors

Unread post by Twentyoneguns »

During my first bout of CFS my doctor was prepared to prescribe Pamipexole for very minor Restless Leg Syndrome (RLS) while in bed...as it was minor I didn't take him up on the offer. Might be a route in?

21
Male
PSSD after 3 days on Sertraline (50mg) (Aurobindo) December 2016 to date.
Tinnitus, insomnia (1.5 hours/night sleep) poor memory/cognition as a bonus!
Possibly PSSD from October 1998...just didn't realise what I was suffering from! (pre internet)
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