PSSD and Sudoscan

Topics related to activism.
WrongMeds
Posts: 3
Joined: Fri May 18, 2018 5:35 am

PSSD and Sudoscan

Unread post by WrongMeds »

People subscribed to Rxisk (everyone interested in PSSD should be) Will know about the below. So lets all get writing;

Several months ago, we became aware of a device called Sudoscan made by Impeto Medical. It’s mainly used to assess peripheral neuropathy in the hands and feet. The company also have a special adaptor for Sudoscan that can test genital function, but it’s custom-made and isn’t commercially available.

We are interested in Sudoscan and particularly the genital adaptor because we think it has a chance of showing an abnormality in PSSD that might allow people to prove their condition exists – it has done so in the case of some diabetes patients – and might get research on a cure going.

One of the UK’s leading experts in peripheral neuropathy already uses Sudoscan and has agreed to help us test PSSD, PFS and PRSD patients if Impeto Medical can supply us the special adaptor. Unfortunately, they seem unwilling to do this and have stopped responding to our messages.

We need your help. We would like you to add your name, country, and the date to Letter 1 and email it to jean-henri.calvet@impeto-medical.com.

(You don’t have to stick to our wording – you’re welcome to write your own.)

If we can get enough people to send letters, the plan is to approach the media and make a story of the company’s refusal to help with this terrible condition.

If possible, we would also like you to get others involved. We’ve included an example letter that can be adjusted (Letter 2) for friends or family. If you come up with any good ideas on ways to drown this company in letters – go for it – and perhaps pass the word on to us or through forums.

We would be grateful if everyone – you or anyone else you recruit – who sends a letter could let us know by email, as we want to keep track of how many letters are being sent to the company and which country they are from.

In addition to letter writing, if you’ve got any other good suggestions about how to wake this company up to its responsibilities, we would like to hear from you.

Sent on behalf of Professor Healy

(I was unable to attach the template emails, but they can be obtained from Rxisk or the emails can be written oursevles
Post Reply

Who is online

Users browsing this forum: No registered users and 10 guests