A brilliant idea for youtube, facebook campagain, even foundation

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sylv
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A brilliant idea for youtube, facebook campagain, even foundation

Unread post by sylv »

The idea was taken from user in another forum

1. Make Youtube Channel, Facebook pages called " Rare diseases".
2. Appear as an Advocacy group run by medical students / doctors for as many rare / orphan diseases as possible
3. Publish short, modern-styled professionally edited videos / posts which quickly describe symptoms with a proper image / animation and music theme
4. For reference materials ask organizations dedicated for each disease
5. Convey the PSSD message among other diseases as an "emerging syndrome" with report PSSD option and contact to EMA / FDA at the end. PSSD should be called Post SSRI Syndrome rather than Post SSRI Sexual Dysfunction ( we know the second term is completely inaccurate and describes only PSSD mild form ). As symptoms, to sexual dysfunction ( with suggestive image ) add emotional blunting with it frequent manifestation ( loss of ability to socialize, no more movies, music, video games, books, hobbies, even food is less rewarding - all with an appropriate image for each) The images speak more than words
6. Do not use sensationalist, tabloid style, the materials should be objective and neutral. Target group should be general public, specialists and medical students who would like to quickly remind their subjects

Why I think the idea is brilliant ? Mixing with recognized diseases will add legitimacy and credibility to us and PSSD. It could be possible to ask for support much wider group of people than for single disease. If we get every organization to publish link to our website / channel, we will gain SEO rating which will increase our exposure and add subscribers and viewers. Hopefully we will stop seeing the 100+ views on PSSD video and start 10 000. Of course something like this would take organized work of at least 3-4 people, but I think it should be worth if done properly.

With such an organization FDA, EMA, MHRA, TGA and other medical agencies hopefully will treat us more seriously. It will also gain us a mean to collect PSSD data from wider public and give some independence from other organizations which are trying to claim PSSD without our voice included. Mixing PSSD along recognized diseases will make much more difficult to call as some conspiracy / anti-psychiatry group like PSSD activists are sometimes offended
JLo22
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Re: A brilliant idea for youtube, facebook campagain, even foundation

Unread post by JLo22 »

I like the idea very much.
chemistry
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Re: A brilliant idea for youtube, facebook campagain, even foundation

Unread post by chemistry »

this is a nice idea, perhaps it could work. You and a few others should get together on discord or messenger or something and work on this - anything helps and is better than doing nothing! I'm already doing work for the Canadian PSSD group on discord (pm if you want to join btw) but would anyone else like to volunteer to be a part of this idea? We need to organize ourselves if we want to get anywhere
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