The worldwide rare disease day is 28th of February 2021:
https://www.rarediseaseday.org/
Important opportunity to raise awareness for PSSD.
Rare Disease Day Feb 28th 2021
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Re: Rare Disease Day Feb 28th 2021
As Firstprinciples has rightly identified,
rare disease organisations are increasingly seeming like one of the best options for raising awareness for PSSD and for getting funding and support.
All of the associations and groups for PSSD and PFS are pursuing this line of thinking.
Some of you might have seen this elsewhere (maybe facebook):
You can tell your story on the rare disease day website. One of our friends has already had her PSSD story published.
https://www.rarediseaseday.org/stories/6936#
Let's all make the effort to submit our stories to the site so that they know that PSSD isn't actually that rare!!!
Follow the weblink to do this.
rare disease organisations are increasingly seeming like one of the best options for raising awareness for PSSD and for getting funding and support.
All of the associations and groups for PSSD and PFS are pursuing this line of thinking.
Some of you might have seen this elsewhere (maybe facebook):
You can tell your story on the rare disease day website. One of our friends has already had her PSSD story published.
https://www.rarediseaseday.org/stories/6936#
Let's all make the effort to submit our stories to the site so that they know that PSSD isn't actually that rare!!!
Follow the weblink to do this.
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