PSSD research looking for patients (Enrollment extended)

This is a place to post research you have done on the topic along with your conclusions.
scot
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Re: PSSD research looking for patients!

Unread post by scot »

I am not sure.
Last edited by scot on Sun Dec 13, 2015 11:28 am, edited 1 time in total.
scot
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Re: PSSD research looking for patients!

Unread post by scot »

Also I cannot find the email of Professor Angel Luis Montejo.
Last edited by scot on Sun Dec 13, 2015 11:29 am, edited 1 time in total.
future-recovery
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Re: PSSD research looking for patients!

Unread post by future-recovery »

I would rather contact Waldinger. He knows 10-15 PSSD cases.

If somebody contacts Waldinger, please let us know, so he doesn't get more than one mail.

I assume that the professor you want to contact would think that PSSD is a symptom of depression. Because he writes "I agree that to stop the treatment seems to be the most useful one but many times depression reapears. "
Last edited by future-recovery on Wed Sep 16, 2015 2:11 pm, edited 1 time in total.
German fmri study about PSSD could be possible! Criteria: http://www.pssdforum.com/viewtopic.php?f=5&t=1020
Send a mail to user sulawesi: sulawesi1@web.de
scot
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Joined: Tue Aug 25, 2015 3:02 am
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Re: PSSD research looking for patients!

Unread post by scot »

Okay,I have just emailed Dr. Waldiger.
Last edited by scot on Sun Dec 13, 2015 11:29 am, edited 1 time in total.
future-recovery
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Re: PSSD research looking for patients!

Unread post by future-recovery »

Thanks!
German fmri study about PSSD could be possible! Criteria: http://www.pssdforum.com/viewtopic.php?f=5&t=1020
Send a mail to user sulawesi: sulawesi1@web.de
future-recovery
Posts: 426
Joined: Sun Apr 05, 2015 9:14 am
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Re: PSSD research looking for patients!

Unread post by future-recovery »

Only a few days left, hurry up!
German fmri study about PSSD could be possible! Criteria: http://www.pssdforum.com/viewtopic.php?f=5&t=1020
Send a mail to user sulawesi: sulawesi1@web.de
future-recovery
Posts: 426
Joined: Sun Apr 05, 2015 9:14 am
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Re: PSSD research looking for patients!

Unread post by future-recovery »

Just got a mail from Mr. Ben-Sheetrit. They need more participants! And you can still take part by sending a mail to them!!
The IRB is due next month.
So please take part. Obviously many users of this forum have not sent a mail to them.
German fmri study about PSSD could be possible! Criteria: http://www.pssdforum.com/viewtopic.php?f=5&t=1020
Send a mail to user sulawesi: sulawesi1@web.de
scot
Posts: 212
Joined: Tue Aug 25, 2015 3:02 am
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Re: PSSD research looking for patients!

Unread post by scot »

Pin this post.
Last edited by scot on Sun Dec 13, 2015 11:29 am, edited 1 time in total.
iull1k
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Re: PSSD research looking for patients!

Unread post by iull1k »

Hello everyone,
Thank you for enrolling in the PSSD study.
We have 85 enrollments so far thanks to you, which is very good – but we need more: we are extending the enrollment for the study until further notice.
The Institutional Review Board (IRB) is due next month, and the study can only begin after its approval. Please note however that IRBs sometimes require amendments for study proposal before it is approved, which can take some more time. We will be in touch and keep you updated from time to time until the study begins.
Also, we are making some changes in the study design, to make it more feasible and practical to carry out. After the study is approved, every one of you who has agreed to take part in the study will need to send us a short letter from his or her doctor, which could be a general practitioner, a psychiatrist, or any other doctor who knows you, which states your general medical and psychiatric diagnoses and current medications (which is quite standard and should not be very difficult to obtain). We will also need you to send some blood tests results, but that’s all we’ll need regarding the medical data – all the rest of the research will be done using video interviews and questionnaires.
The in-depth internet video interviews (e.g. via Skype) will give you the opportunity to tell us in detail everything that you feel is important about your condition and will help us to gather valuable information about PSSD, the various symptoms that co-occur with PSSD, treatments you have already tried etc. We think it’s the best way to overcome the geographical distances between us, which obviously span the entire world, without requiring you to travel or spend money and without losing valuable data that is obtained only in person-to-person clinical interviews.

Sincerely,

Joseph Ben-Sheetrit, MD

and the rest of the PSSD Research Team
future-recovery
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Joined: Sun Apr 05, 2015 9:14 am
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Re: PSSD research looking for patients!

Unread post by future-recovery »

Copied from the yahoo group:
Hello everyone,

We have 85 enrollments so far for the PSSD study, which is very good – but we need more.
We are extending the enrollment for the study until further notice, which means you can still get enrolled in the study until announced otherwise.

The Institutional Review Board (IRB) is due next month, and the study can only begin after its approval. Please note however that IRBs sometimes require amendments for study proposal before it is approved, which can take some more time. We will be in touch and keep you updated from time to time until the study begins.

Also, we are making some changes in the study design, to make it more feasible and practical to carry out. After the study is approved, every patient agreeing to take part in the study will need to send us a short letter from his or her doctor, which could be a general practitioner, a psychiatrist, or any other doctor who knows you, which states your general medical and psychiatric diagnoses and current medications (which is quite standard and should not be very difficult to obtain). We will also need you to send some blood tests results, but that’s all we’ll need regarding the medical data – all the rest of the research will be done using video interviews and questionnaires.

The in-depth internet video interviews (e.g. via Skype) will give you the opportunity to tell us in detail everything that you feel is important about your condition and will help us to gather valuable information about PSSD, the various symptoms that co-occur with PSSD, treatments you have already tried etc. We think it’s the best way to overcome the geographical distances between us, which obviously span the entire world, without requiring you to travel or spend money and without losing valuable data that is obtained only in person-to-person clinical interviews.

New enrollers – please email us at joseph.ben.sheetrit (at) gmail.com stating your first name, gender, age, city and country of residence, the medication(s) implicated, whether you’ve quit the medications or are still taking them, and when did the sexual problems that you have today begin with regard to taking the drugs (have first noticed it before taking the drugs, during drug treatment, or only after stopping the drugs?).

Sincerely,

Joseph Ben-Sheetrit, MD
and the PSSD Research Team
Last edited by future-recovery on Sat Oct 03, 2015 3:12 pm, edited 3 times in total.
German fmri study about PSSD could be possible! Criteria: http://www.pssdforum.com/viewtopic.php?f=5&t=1020
Send a mail to user sulawesi: sulawesi1@web.de
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