thanks for the reply. yes ive talked with many people who feel better after coming down with being sick. its incredible how quickly most return to relatively normal after a short period of being sick. it just sucks that its taken this long to really understand whats going on. with covid being a huge issue, especially for people with consistent issues, the solution cant be too far off at this point. im sorry to hear you've been suffering for so long, i hope you can get back to normal here soon. wishing you the bestMaxin wrote: ↑Thu Dec 23, 2021 3:27 am Just chiming know here thanks for posting as I agree. I have cfs from ssri and I NEVER get sick. It’s actually crazy because the only time I’ve been sick in 16 years in when I got COVID in 2020 right when it came out. I was actually super excited not realizing it was Covid. However I believe due to my cfs I have long haul so I’ve been following a lot of the treatments as they will benefit the cfs community as well.
I’ve also discovered how many people with cfs were triggered by ssri’s. It’s all related and comes down to immune dysregulation.
Aspheresis is looking promising as well. And in my early years of cfs they found my blood had high fibrogen. Which it goopy blood. Similar to what we’re seeing with the micro clotting longhaulers.
its interesting you talk about aspheresis, this is likely why you have all of the issues stemming from the immune dysfunction. if your blood flow is like this, its unlikely that the blood can even reach places that its supposed to. in the studies with BC 007, they showed that long covid patients had decreased blood flow to the eye, after treatment, this blood flow normalized