Recovery Analysis Project

[TalkingAnt]

Hello all,

I am starting a project to analyze recovery stories of PSSD, PFS, PAS, and related disorders. The goal is to find commonalities in recovery stories. With this information we can come up with an ordered list of what treatments are best to try, which could be customized based on what caused your disorder. The project will also serve as a central repository of recovery stories- as well as a place to document new recovery stories.

The methodology is currently as follows:
- Document recovery stories in a spreadsheet.
- Tag recovery stories with relevant tags (what they took, types of treatments, etc).
- Associate tags with "metatags." For example, stories that used ginko biloba or SJW would be tagged with "k-opiod antagonist."
- Calculate the most common tags with various filters on the data, like PSSD-only, PFS-only, all stories, etc.
- Explore theoretical implications of the analysis.
- Periodically publish reports on the results.
- Continue to accept new recovery stories into the data as they come.

Where I am right now:
- Spreadsheet designed (Google Sheets)
- Preliminary analysis code written (Google Apps Script - ES5 JS)
- ~70 recovery stories documented
- Preliminary metatag definitions

I am looking for people who want to contribute to the project. By becoming a contributor, you will get early access to the data. Here are some roles I am looking for:

Data entry
- Search the internet for relevant recovery stories and enter the data into a form
- Tag the story with relevant tags

Data checker
- Review and verify existing story data
- Verify accuracy of story tags

Researcher
- Assist with metatag definitions
- Assist with data analysis methodology
- Assist with report generation
- Explore theoretical implications of the data analysis

Developer
- Assist with spreadsheet design and analysis code
- Currently using Google Sheets and ES5 JS Google Apps Script

I am looking to build a team of contributors, such that we can have some preliminary reports available to the public within the next few months. If you would like to join the team, please reply with how you would like to contribute (roles or what skills/activities). You will need a google account so I can give you edit access to the spreadsheet. Please PM or email (talkingant5@gmail.com) your google account.

Please only apply if you have the time to put in at least a few hours of work per week into this. I expect most of the work to be done within 3 months.

Eventually we will open up the spreadsheet for public viewing, and provide a form to submit new recovery stories. I am keeping it private for now to incentivize contributors and focus our time on dealing with the data/analysis. Until we have much more data/analysis, there isn't much to glean from it anyway.

[Ghost]

I'd love to help and could contribute time to it.

[hs1312]

Can you give us the list of 70 recoveries you compiled ?

[been_too_long]

Can you give us the list of 70 recoveries you compiled ?

was thinking the exact same thing

[TalkingAnt]

Can you give us the list of 70 recoveries you compiled ?

was thinking the exact same thing

The data is too preliminary, it won't be able to help anyone at this time. As stated if you want to contribute then you can get access to the spreadsheet. If you dont want to contribute, know that I am working as fast as I can to get something useful out to the community. Building this team should speed things up further.

[hs1312]

Dont understand what you are saying. You must have compiled the list of web links of the 70 recovery stoties you mentioned. We want you to copy paste those links here . Shouldnt be that difficult for u?

[Ghost]

Nothing will be released until the project is further along.

Releasing the list before it's complete is not helpful other than getting quick satisfaction.

I agree with the decision to withhold it for now.

[Jaxx]

id like to help too. lets discuss which type of help makes most sense.

[TalkingAnt]

Great Jaxx, please PM me a google account I can share it with. Right now, the most effort is needed in data collection and data QA. I have a To Do list in the spreadsheet we can work off of, to split up the search load, etc.