What can be done?

[anacleta]

1- reporting to the Medicines Agency of your country
2- reporting on Rxisk.org https://rxisk.org/experiencing-a-drug-side-effect/ (we have been considered by the EMA thanks to the collection of Rxisk!)
3- questionnaire prof. Cosci http://www.pssdforum.com/viewtopic.php?f=44&t=2072
4- questionnaire Propeciahelp https://forum.propeciahelp.com/t/post-d ... pate/34482
5- contact health institutions and research associations (neurology, epigenetics, andrology, rare diseases etc.) trying to engage them
6- contact researchers around topics of SSRIs and sexual side effects, epigenetic etc., looking for someone interested in investigating
7- commenting on the articles on Rxisk.org to show that we are
8- sending our stories to magazines so that they are published
9- write on pssdforum.com and collaborate in groups
10- if there is between us a singer or a director could make a song or a documentary on pssd
11- donate to Rxisk Prize https://rxisk.org/prize/
12- participate in the genomic program of Ghost http://www.pssdforum.com/viewtopic.php?f=5&t=1993 ,
13- share any therapy attempts and their outcome
14- public and mediatic demonstration
15- think about whether to form an association and move through legal channels (class action)
16- any other idea

[omar90]

It would be good to contact newspapers/journalist in the days leading up to EMA's 10th June declaration on PSSD. If they acknowledge that the condition exists it will be the first time there is acceptance that SSRI's can have long term impact on an individuals help beyond usage of the drug and withdrawal. I would imagine thats quite an important news story.

Goes without saying that EMA may deny its existence altogether.