PSSD Forum

I was in contact with Gordon and slater before and they arranged a phone consultation but I didn't get back in touch. Anyway, I think that's encouraging that they thought it was worth a call.

There's a lawyer who I used previously who I've contacted about pssd yesterday. I'm fairly confident that he'll at least get back to me with some advice.

When I saw a doctor who was aware of pssd, he seemed nervous. He was obviously worried about the situation, and there's obviously something fundamentally wrong when urologists, endocrinologists etc are aware of pssd yet GPs and psychiatrists aren't. They really do have no empathy at all for us.

If you're in the UK and willing to devote some time to this, let me know. I want to start a Skype group and we can coordinate legal proceedings and media contact.

Lawyers will always get back to you and may even rate chances of settlement higher than they actually are because they want to make the money. For any chance of successful legal action it'd have to be a class action lawsuit with many many people on board.

raven100 wrote:Lawyers will always get back to you and may even rate chances of settlement higher than they actually are because they want to make the money. For any chance of successful legal action it'd have to be a class action lawsuit with many many people on board.

I think its still important to at least contact an attorney if this is something someone is interested in doing. Often times there is statute of limitations that expires so by at least contacting you are getting the ball rolling

I am UK and in in theory. I can join the skype group. Time i am not so sure but my name is down.

I can so a sky chat later in the week if people are willing

raven100 wrote:Lawyers will always get back to you and may even rate chances of settlement higher than they actually are because they want to make the money. For any chance of successful legal action it'd have to be a class action lawsuit with many many people on board.

Yeah, I know this. I'm not rushing into signing a contract with him or anything, he's just a good lawyer with relevant expertise that I've used before who can hopefully give me some advice about what kind of claim to pursue and how to start it. And yeah I know it's going to have to be class action, that's why I'm trying to gather people in one jurisdiction to make a stand. Or reach out to the media, PALS etc, but whatever we do it's got more weight coming from 5 or 10 people than 1 and it could start a snowball effect. If we try really hard to get more publicity, perhaps people with PSSD who haven't made the connection to the meds will realise what's going on.

lost_soul wrote: When I saw a doctor who was aware of pssd, he seemed nervous. He was obviously worried about the situation, and there's obviously something fundamentally wrong when urologists, endocrinologists etc are aware of pssd yet GPs and psychiatrists aren't. They really do have no empathy at all for us.

I think they are aware, castration is well known side effect in psychiatry, and they belive in old school aproach "it is all in your head"
Yesterday i was so angry how it s possible to create such awfule lifetime torture....i become suicidal once again...

Bigmum wrote:

lost_soul wrote: When I saw a doctor who was aware of pssd, he seemed nervous. He was obviously worried about the situation, and there's obviously something fundamentally wrong when urologists, endocrinologists etc are aware of pssd yet GPs and psychiatrists aren't. They really do have no empathy at all for us.

I think they are aware, castration is well known side effect in psychiatry, and they belive in old school aproach "it is all in your head"
Yesterday i was so angry how it s possible to create such awfule lifetime torture....i become suicidal once again...

I saw a psychiatrist (MD) who believed flat out in pssd (went to him post-pssd). He said I was his first patient with it, but said "anything is possible". Not all doctors prescribing these drugs are souless humans.

Come on guys. We need to get back to why this forum exists...

"A forum dedicated to collaborative research into PSSD (Post-SSRI Sexual Dysfunction)"

Sure, it should be a refuge for your anger and support, but, when 90% of what's posted consists of this, things need to change. Repeatedly saying "lifetime" and "no chance" is just digging a f**** hole for yourselves. I started taking better care of myself and getting some sunlight (free) everyday this past month and, if you would believe it, I wake up with a libido. Sure, I don't want to f*** everything in sight like when I was 18, but at least something is there. Would you rather be paralyzed from the neck down and have someone wipe your ass and bathe you every day?

There's several different substances that have been listed on this site that no one has taken a second look at. If you want to change your situation, and you don't think it will happen naturally, try one out.

Hi, I'm not in UK, but EU. Is it still possible to participate? I assume on EU level we could find like 10-20 person at least who would actively participate. I was harmed by (generic) escitalopram like many others. I have the feeling (by researching this for 2,5 years already) this is the drug (together with citalopram) that causes the most permanent castration.

Do we have a lawyer here? I thought we do. Can I sue even if I got the generic form and not the brand name? Can we have a class action when we've taken different drugs from the SSRI class?
Thank you if someone knowledgeable can help. If an EU level class action is possible (I hope so) I'm in.

A short addition: I'm a woman, and participated in Ben-Sheetrit's study. As for me the process ended already (I assume not for everyone, so it's not the final result) I asked him about his conclusions so far. He thinks that it is a kind of serotonergic neurotoxicity, just FYI. I hope this will help in recognizing it in the medical field in the near future.

"Thank you again for your appreciation and for taking part in the study.

The results will be analyzed once the study is finished, and could then be submitted for publication in a medical journal. If accepted for publication, such publication will, of course, contain a summary of the study results. My current theory regarding PSSD is that it represents an idiosyncratic drug reaction mediated by serotonergic neurotoxicity. More research is clearly needed, and I hope that treatments such as flibanserin (already approved by FDA for female hypoactive arousal disorder) and bromelanotide (currently still in research to the best of my knowledge) will be found useful for PSSD in future studies, although I am not aware of open trials for PSSD patients with these (or other) medications."