Activism - Maldoror OP

[Moloch]

Maldoror on Mon Feb 10, 2014 1:46 pm

I asked Sonny to open this sub forum so we can concentrate our activism efforts here.

In the next few weeks I will open some new topics with my activism ideas.

Those ideas are:

1 - Writing and sending an email to international media explaining what PSSD is, how we've been ignored by the medical "status quo". We will be basically trying to "sell" a news story so the text will have to be well worded and appealing.

2 - Setting up a simple website in as many languages as possible. That website will have the deleted wikipedia page. Then our biggest challenge will be how to make it appear in the first page of Google search. This website could be very important in order to gather contacts of SSRI victims. People who don't speak English are excluded from this community and we must fix that. Maybe we need to open new forums for other languages.

3 - A class action (class suit). Starting a class action in as many countries as possible is definitely something I want to do. We need some sort of "national coordinator"; someone who finds people who want to sue in their native country. To find those persons I believe the site I mentioned above will be important.


More later.

[Moloch]

c24 on Tue Feb 11, 2014 1:50 am

That's a good initiative Maldoror Smile

Maybe we could use a symptoms/profile template to new members, similar to the one they use on propeciahelp.com: http://www.propeciahelp.com/forum/viewt ... ?f=3&t=371 ?

[Moloch]

Maldoror on Sat Feb 15, 2014 1:45 pm

That's a good idea.

What do you think Sonny? Maybe we could update that template for PSSD and keep it as a sticky in some subforum.

[Moloch]

hopetorecover on Sun Apr 27, 2014 12:40 am

I agree this needs to be done... would be willing to help edit if I have the time, I am decent at being concise and impartial. I think we could definitely get people to listen if we were like you said well-worded.

More people need to know about this.

Here is the link to 114 case histories of PSSD

https://groups.yahoo.com/neo/groups/ssr ... ase/2/edit

Almost everyone I know has been hurt by an SSRI. Have two friends who started having seizures, one became suicidal and attempted, several with PSSD, several with drowsiness... blah blah blah these drugs are unsafe, period.

The problem is that everyone with a bad experience has no outlet to talk about it and no one knows that SSRIs are not the magical wonder pill of amazingness, but instead are literally poison for many, until it happens to them.

Have been poking around on internet and have found that the "company" who makes the one that gave me PSSD has had to pay out 330 million in damages and legal fees for literally fudging data and claiming the drug can be used on children. The companies are fradulent. Drug companies do not give a single **** about the mental health of people in my perception, maybe some employees do want to help but overall they are there to make money and they dont care who gets hurt.

The incompetent psychiatrist who misdiagnosed me, lied to me about the risks of SSRIs, gave me PSSD, and then denied 1) that it was possible to get PSSD and that 2) it was her fault is still "at large", she works in a setting where several of my friends see her [need to leave that vague on purpose because unlike them, I am an adult about this situation and refuse to slander them or reveal their identities]. And I know in fact that she is indirectly pressuring others to take SSRI, anti psychotic the same way she pressured me because they have told it to me.

There are several facebook groups on the matter, fyi.

I have told almost all my friends and my eating disorder treatment team and doctor. Unfortunately, it does not seem that they care to spread the word or warn future patients.

M

[Moloch]

Sonny on Mon Apr 28, 2014 8:26 am

I can do that. Just give me some input on how to edit it, and where it should be placed.

[Moloch]

Maldoror on Sun May 18, 2014 1:27 pm

Hey folks, I really wanna get this thing going so our first task would be to translate the deleted Wikipedia's PSSD page to several languages, so it could feature on the future website.

But first I think I should ask if anyone suggests any add, deletion or editing to the current version (http://pssd.forumotion.com/h2-pssd-wiki ... 01-26-2014).

So, speak now, or forever hold your piece!

[future-recovery]

Here is the link to 114 case histories of PSSD

https://groups.yahoo.com/neo/groups/ssr ... ase/2/edit

Interesting! I didn't know that there was something like this.

We really need more activism. Come on guys!

[EricCartmanRJ]

Honestly, I think the risk of having my mental problems unnecessarily public exposed is much higher than winning a law suit like this. It would be diferent if previous sucess cases were in front of me to encourage
Did anyone got further with those ideas ?

[future-recovery]

Why are there no Chinese and Indian people with PSSD? I read that about 30 million people have depression in China. But I read that there are very few psychiatrists in China.
And only 15% of the population can speak English. Maybe one should inform some chinese doctors sometime or make a chinese wikipedia page. Though having an english wikipedia page would be more important. Nothing what we can do?

Ok, according to this http://wp.rxisk.org/no-sex-and-the-city/ there are chinese people with PSSD.

There are also many reports from Poland.

We need more activism. And by the way: Look, there's a foundation for the Post-Finasterid syndrom: http://www.pfsfoundation.org
Another site is http://www.propeciahelp.com

[forexworld12]

Why are there no Chinese and Indian people with PSSD?

I am one !