NEW PSSD STUDY LOOKING FOR SUFFERERS - PLEASE READ

[lw77]

Guys don't worry, tomorrow i will write a mail to Prof. Cosci tu ask her about the second phase.
Maybe it could be that the skype interviews will start with the italians because the study team is from Italy.
I will ask if in the future there will be interviews also from people from outside Italy.
As we say "non vi preoccupate (=do not worry)

[geri]

DONE

All you have to do is go to the doctor and make a blood test.

The needed values are:

TSH (thyroid stimulating hormone)
FT3
FT4
Total Testosterone
Free Testostetone
SHBG (Sex Hormone Binding Globulin)
Prolactin
LSH (luteinizing hormone)
FSH (follicle-stimulating hormone)
Oxytocin

That's all, please get those data and participate.

[future-recovery]

Hi guys, today we (the people who filled Prof. Cosci's questionnaire) have been contacted to arrange a skype interview (this second phase is optional).
I would like to remember to everyone that this is the only human study on PSSD in the whole world at the moment (as far as i know).
I ask all of you that they did not to partecipate at least to the first phase of the study (questionnaire).
I repeat guys if we have one on a million possibilty of doing something this is our chance.
I will not allow people to tell me that psychiatrist don't believe them if they didn't partecipate to the study.
Prof. Cosci is a recognized scientist, she believes us and wants to help us, so let's do the questionnaire

Link for male questionnaire:

https://docs.google.com/forms/d/e/1FAIp ... sp=sf_link

Link for female questionnaire:

https://docs.google.com/forms/d/e/1FAIp ... sp=sf_link

Without any official statement of Prof. Cosci (the survey even doesn't mention who conducts the study) about the privacy I won't do anything. I already said this two months ago and nothing has happened. So when you want people to participate, there needs to be an official statement.

[north4]

Hi guys, today we (the people who filled Prof. Cosci's questionnaire) have been contacted to arrange a skype interview (this second phase is optional).
I would like to remember to everyone that this is the only human study on PSSD in the whole world at the moment (as far as i know).
I ask all of you that they did not to partecipate at least to the first phase of the study (questionnaire).
I repeat guys if we have one on a million possibilty of doing something this is our chance.
I will not allow people to tell me that psychiatrist don't believe them if they didn't partecipate to the study.
Prof. Cosci is a recognized scientist, she believes us and wants to help us, so let's do the questionnaire

Link for male questionnaire:

https://docs.google.com/forms/d/e/1FAIp ... sp=sf_link

Link for female questionnaire:

https://docs.google.com/forms/d/e/1FAIp ... sp=sf_link

Without any official statement of Prof. Cosci (the survey even doesn't mention who conducts the study) about the privacy I won't do anything. I already said this two months ago and nothing has happened. So when you want people to participate, there needs to be an official statement.

is there a statement for the german fmri study ?

[lw77]

Hi guys, today we (the people who filled Prof. Cosci's questionnaire) have been contacted to arrange a skype interview (this second phase is optional).
I would like to remember to everyone that this is the only human study on PSSD in the whole world at the moment (as far as i know).
I ask all of you that they did not to partecipate at least to the first phase of the study (questionnaire).
I repeat guys if we have one on a million possibilty of doing something this is our chance.
I will not allow people to tell me that psychiatrist don't believe them if they didn't partecipate to the study.
Prof. Cosci is a recognized scientist, she believes us and wants to help us, so let's do the questionnaire

Link for male questionnaire:

https://docs.google.com/forms/d/e/1FAIp ... sp=sf_link

Link for female questionnaire:

https://docs.google.com/forms/d/e/1FAIp ... sp=sf_link

Without any official statement of Prof. Cosci (the survey even doesn't mention who conducts the study) about the privacy I won't do anything. I already said this two months ago and nothing has happened. So when you want people to participate, there needs to be an official statement.

Guys, even if the privacy statment wasn't written on the page, and i'm not sayin' it isn't, privacy is granted in scientific studies. Those are serious researchers, and all of the studies, before being lead, need an approval by an ethical committee, and privacy is one of the first thing needed. Those researchers will not ruin thei careers not mantaining privacy. What you written is absurd, please don't discredit studies that can save our lives.

[Ghost]

Everyone NEEDS to trust this study. I have been in contact with people working on it.

It's legit.

It's one of the best chances we have.

Huge thanks to lw77 for working on this!

[future-recovery]

Hi guys, today we (the people who filled Prof. Cosci's questionnaire) have been contacted to arrange a skype interview (this second phase is optional).
I would like to remember to everyone that this is the only human study on PSSD in the whole world at the moment (as far as i know).
I ask all of you that they did not to partecipate at least to the first phase of the study (questionnaire).
I repeat guys if we have one on a million possibilty of doing something this is our chance.
I will not allow people to tell me that psychiatrist don't believe them if they didn't partecipate to the study.
Prof. Cosci is a recognized scientist, she believes us and wants to help us, so let's do the questionnaire

Link for male questionnaire:

https://docs.google.com/forms/d/e/1FAIp ... sp=sf_link

Link for female questionnaire:

https://docs.google.com/forms/d/e/1FAIp ... sp=sf_link

Without any official statement of Prof. Cosci (the survey even doesn't mention who conducts the study) about the privacy I won't do anything. I already said this two months ago and nothing has happened. So when you want people to participate, there needs to be an official statement.

is there a statement for the german fmri study ?

Yes, mails were published and furthermore the study hasn't even started yet.

Those researchers will not ruin thei careers not mantaining privacy.

You can say this about every researcher and this survey even doesn't mention who the researcher/university is.
Generally a survey that doesn't even mention who gets the data isn't very trustworthy. That's absurd!

[lw77]

Guy, i am in contact personally with Prof. Cosci and i can ensure you that those links refer to her questionnaire. If you don't want to do it it's not a problem but please don't influence other persons who want to do the questionnaire to participate to the only study on PSSD. I repeat you can mail Prof. Cosci and ask her "in person" about the study and every privacy statement you feel you need.
I repeat again: please do not get in the way our only study.
I made both the questionnaire and the skype interview (the second part of the study, that now is only for people in italy, but in the future they are trying to include people from outside of italy), and it seemed to me very well done.
Here's Prof. Cosci's mail, just in case:
fiammetta.cosci@unifi.it