GoFundMe for PSSD

[rk1234]

Do any of you think it would be worthwhile to raise awareness and funds for research via a crowdsourcing website? I noticed that RXISK is trying to raise money as a prize for a treatment solution, however it seems as if the donation page is somewhat hidden. If we could raise more awareness and make it easier to donate it may be easier to gain support.

[Numbtomind 2]

Great idea let's spread the awareness and raise money for a good cause

[marsupial]

When we collect money to keep these pages running every year, there is always just a few people who are willing to donate abouot 10$ or so. Others are just taking advantage of it and let this few people to pay for them. Therfore collect money for some serious research or awarness can be just a wish

[sulawesi]

I think it's a good idea to collect money finally. But shouldn't we define a goal that we collect for first?
Would it make sense to try to find out if the reason for PSSD is a mutation in our exomes - so we should do exome sequencing? Or should we collect money for tests with animals?
what kind of study would make the most sense and what would it cost us?

[Kk88]

I feel bad that I have never contributed when this forum has helped me so much. Money is tight for me but rather than a one off payment I’d definitely consider a monthly direct debit. Ghost - can this be organised or is it a headache? Would other people be interested in donating this way?

[Ghost]

I can help with collecting money if people want. I already have some donations from my site - about $500. That's dedicated to the genomes and the site running but at some point I could start a new fund too.

We're gonna need A LOT more money if we want scientists though.

[lw77]

How does GoFundMe works specifically?, i have only a generic idea. Do any of you think it can help, and most important, don't we risk to be censored by the social media because of the economic interests at stake?
Lw