Launch of PFS Network
Posted: Mon Mar 01, 2021 8:13 am
Yesterday, on Rare Disease Day 2021, we have launched PFS Network (www.pfsnetwork.org), an outreach-focused site that provides a clear information resource and a hub for the projects of the propeciahelp team, who form pfsnetwork. The site includes the following:
- A professionally animated and voiced explainer
- A powerful video compilation of six patients explaining the human cost of PFS
- Six individual patient video stories
- A clearly presented resource for important scientific publications about PFS
- Links to our social media (Twitter, YouTube)
- A new combined mailing list and blog
- Our five organisational objectives
- A downloadable covering letter and study pack for patients and their families to take to clinicians (located at the bottom of the homepage)
The most important content launched together with this site are six videos of patients describing the impact of persistent-side effects from Finasteride on their life as well as an animated explainer video. Please also check our YouTube channel for the videos (https://www.youtube.com/channel/UCQXyXb ... hPp5RVI88A).
I hope this content will inspire the PSSD community in their own awareness projects. It would also be highly appreciated if you could like, subscribe, share and retweet our content as social media algorithms are largely driven by interactions. You may ask what all this has to with PSSD? While the focus of PFS Network is currently on Post-Finasteride Syndrome, the staff highly suspects that our respective conditions may have similar if not identical underlying molecular drivers. Hence, any progress on one front may be of significance for the respective other community.
Thank you in advance for reading and supporting!
N.
- A professionally animated and voiced explainer
- A powerful video compilation of six patients explaining the human cost of PFS
- Six individual patient video stories
- A clearly presented resource for important scientific publications about PFS
- Links to our social media (Twitter, YouTube)
- A new combined mailing list and blog
- Our five organisational objectives
- A downloadable covering letter and study pack for patients and their families to take to clinicians (located at the bottom of the homepage)
The most important content launched together with this site are six videos of patients describing the impact of persistent-side effects from Finasteride on their life as well as an animated explainer video. Please also check our YouTube channel for the videos (https://www.youtube.com/channel/UCQXyXb ... hPp5RVI88A).
I hope this content will inspire the PSSD community in their own awareness projects. It would also be highly appreciated if you could like, subscribe, share and retweet our content as social media algorithms are largely driven by interactions. You may ask what all this has to with PSSD? While the focus of PFS Network is currently on Post-Finasteride Syndrome, the staff highly suspects that our respective conditions may have similar if not identical underlying molecular drivers. Hence, any progress on one front may be of significance for the respective other community.
Thank you in advance for reading and supporting!
N.