PSSD Foundation

[future-recovery]

I think it does not have to be a foundation.
We could consider which kind of study would be important and try to find willing researchers. Then we could try to raise money for the study. I guess that would be cheaper instead of founding a foundation.

[Better]

I totally agree with you fasttrack1982.

[fema4psyciatrists]

as far as I can tell there is not even one dedicated blog on the web...

so maybe that's where it has to start and maybe I have to start it

I made a video with my face aswell on youtube its not a finished video I am going to get help to have it re-done and do more build up a youtube and network presence obviously. im not the only video on youtube.

Its not something I want to do, like degrade myself even further but how worse can it get really. I am going to have to grow thicker skin and if I am not teased for that I will for some other stupid reason. Ive already been mostly steralized asexual.
anyway heres the link https://www.youtube.com/watch?v=RgvTTSOc_r8

[fasttrack1982]

I am not good with technology, but I have some financial resources that I would be willing to contribute to anyone who is serious about spreading awareness and trying to create research into this situation. I wouldn't even know where to start, but i'm willing to support someone who does. Maybe someone younger who doesn't want to be this way their whole could dedicate themselves to it.

[sjv16477]

I thought about that, too.
My ideas:

1. We could ask the PFS foundation for help
2. We could ask them whether PSSD victims could participate in certain PFS studies. Because this could help to learn more about PFS, too. It is also not totally impossible that Finasteride could have serotonergic consequences.
3. We could ask Rxisk. Because they have relations with the Cardiff University.
4. We could contact universities and physicians who study the PFS.

They also have a twitter account: https://twitter.com/RecallPropecia & https://twitter.com/PFSFoundation

And they also want people to report their symptoms: http://www.pfsfoundation.org/news/remin ... onitoring/

We need a reliable web site where every one can learn the existence of pssd, the research in progress where people can donate money to foundraise research. We can do a web site like the one of pfs. Does anyone know how to do a website?

[Ghost]

I thought about that, too.
My ideas:

1. We could ask the PFS foundation for help
2. We could ask them whether PSSD victims could participate in certain PFS studies. Because this could help to learn more about PFS, too. It is also not totally impossible that Finasteride could have serotonergic consequences.
3. We could ask Rxisk. Because they have relations with the Cardiff University.
4. We could contact universities and physicians who study the PFS.

They also have a twitter account: https://twitter.com/RecallPropecia & https://twitter.com/PFSFoundation

And they also want people to report their symptoms: http://www.pfsfoundation.org/news/remin ... onitoring/

We need a reliable web site where every one can learn the existence of pssd, the research in progress where people can donate money to foundraise research. We can do a web site like the one of pfs. Does anyone know how to do a website?

I'm working on one, and I know Sonny and I are too

[sjv16477]

I thought about that, too.
My ideas:

1. We could ask the PFS foundation for help
2. We could ask them whether PSSD victims could participate in certain PFS studies. Because this could help to learn more about PFS, too. It is also not totally impossible that Finasteride could have serotonergic consequences.
3. We could ask Rxisk. Because they have relations with the Cardiff University.
4. We could contact universities and physicians who study the PFS.

They also have a twitter account: https://twitter.com/RecallPropecia & https://twitter.com/PFSFoundation

And they also want people to report their symptoms: http://www.pfsfoundation.org/news/remin ... onitoring/

We need a reliable web site where every one can learn the existence of pssd, the research in progress where people can donate money to foundraise research. We can do a web site like the one of pfs. Does anyone know how to do a website?

I'm working on one, and I know Sonny and I are too

Can we help in some way, like writing some article or translating in other languages?

[Coraggio]

I am agree with every activism. I suggest one thing: we can' t stay here for free. Everybody has to do something for PSSD. Everybody sould write his skills and abilities in order to create team of work. For exemple, I have medical background and I want help Ghost in his researches. I can also try to contact physicians in my country. I can also give my money part for PSSD foundation.

We need computer technicians, business men, communicators, lawyers, everyone could be usefull.

Also, I am not agree PSSD isn't yet recognized at all. We have moreless 15 scientific studies that prove its existance. We have also famous physicians who denounce PSSD like Dr. Stuart Shipko, Dr. Healy and others... in netherlands PSSD has been recognised. I think we must create PSSD foundation to speed the process.

[fasttrack1982]

I am a businessman with PSSD, I could donate money.

[sjv16477]

I am agree with every activism. I suggest one thing: we can' t stay here for free. Everybody has to do something for PSSD. Everybody sould write his skills and abilities in order to create team of work. For exemple, I have medical background and I want help Ghost in his researches. I can also try to contact physicians in my country. I can also give my money part for PSSD foundation.

We need computer technicians, business men, communicators, lawyers, everyone could be usefull.

Also, I am not agree PSSD isn't yet recognized at all. We have moreless 15 scientific studies that prove its existance. We have also famous physicians who denounce PSSD like Dr. Stuart Shipko, Dr. Healy and others... in netherlands PSSD has been recognised. I think we must create PSSD foundation to speed the process.

It's very important to contact physician and researchers because maybe they are interested in studing pssd cases but maybe they lack people to study or are waiting for more scientific evidence or case to presents to a medical commission. It's important to spread our story.