Are there recovery stories after several years?

[John321]

I have had pssd for 5 yrs now. I had no recovery for almost 1 yr. Then I started to have 1-2 good days a month. Currently at around 25 good days a month. I get a bad wave once every 2 months which can last for 1-2 weeks. Still not a 100% but far better. Don't believe ppl who say you're doomed. We're not and we all will fight.

[Ventus]

I have had pssd for 5 yrs now. I had no recovery for almost 1 yr. Then I started to have 1-2 good days a month. Currently at around 25 good days a month. I get a bad wave once every 2 months which can last for 1-2 weeks. Still not a 100% but far better. Don't believe ppl who say you're doomed. We're not and we all will fight.

Thats awesome! If I recovered to the point you are at I would be so happy.

[Sofa]

I agree,

Lots of people eventually fully recover or make a significant recovery. Those that don't recover much after many years are a subset of even rarer PSSD sufferers.

I for one have made good progress in the last 8/9 months from one of the worst sufferers on here and I can finally see the light at the end of the tunnel.


Dr David compares it to TD and says it like there is no hope. In fact when I looked into TD since my cause of PSSD and FND like symptoms were from an AP which cause TD. I found that long term follow ups of TD sufferers made complete or near complete recovery by 5 years. It's not permanent like people claim to be, there just isn't decent long term follow up studies on it just like PSSD an other similar conditions.

Just had a really bad crash from B12 again. No libido, no sexual feeling and numbness in genitals, no arousal, orgasm completely gone!

Can i even get better? I need to continue the B12 because of deficiency. Take 1000 mcg