Uppsala Monitoring Centre (UMC) of the World Health Organisation (WHO) can help us?

[anacleta]

There is this body called the Uppsala Monitoring Centre (UMC) of the World Health Organisation (WHO)

"Uppsala Monitoring Centre advances the science of pharmacovigilance and supports medicines and patient safety initiatives all over the world." Read here https://who-umc.org/about-uppsala-monitoring-centre/

"Identifying sources of potential harm to patients is UMC's highest priority. Detecting and communicating signals of such harm lies at the heart of pharmacovigilance." Read here https://who-umc.org/signal-work/

We can study a little better in what ways the UMC could help us with PSSD (and PFS) and send them a well-written message (perhaps via PSSDNetwork is even better) with our requests/invitations.

Let us also remember that the diseases so defined are those recognised by the WHO (which is updated every few years, and introduces a new disease following general recognition by the medical community anyway).

If anyone writes to them, please let us know.