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Re: Research-we need your help!

Posted: Wed Jan 10, 2024 8:57 am
by julial
Thanks! That's a good point, we will definitely take that into account for the next steps.

Re: Research-we need your help!

Posted: Wed Jan 10, 2024 2:05 pm
by Breathdeep
Hi again. Just a thought if you haven't already contacted various drs that are seeing patients with pssd currently. I see a few consultants that are in UK that acknowledge pssd and are highly experienced consultants etc. for example a neuro-urolgist and neurologist in the neurological hospital London I see sees quite a few people with pssd. So does another consultant I see. This is in UK but I'd be happy to share details if you pm me. Just incase it's of any help

Re: Research-we need your help!

Posted: Wed Jan 10, 2024 4:18 pm
by julial
Of course, I wrote you, thanks a lot!

Re: Research-we need your help!

Posted: Thu Jan 11, 2024 11:25 am
by Determined-Mind
Hello!
I thought this thread about PSSD symptoms in women and the challenges they face would be interesting, so I'm sharing it with you: https://www.reddit.com/r/PSSD/comments/ ... for_girls/

Re: Research-we need your help!

Posted: Thu Jan 11, 2024 3:43 pm
by Determined-Mind
Another symptom I'm experiencing and that someone on reddit has expressed: loss of gustatory pleasure!

This is a non-sexual symptom, but one that is linked to the experience of pleasure.

I'll tell you, just in case

Re: Research-we need your help!

Posted: Fri Jan 12, 2024 2:32 am
by Ghost
Hey Ewa and Julia - glad you are working on this. I am also a medical student and longtime member of the community.

I'm not on here very often because of school but if you have any questions please shoot me a PM and I would love to chat in more detail about PSSD.

Thank you again for your work on this under-researched and serious condition!

G