I'm collecting data on treatments being tried for PSSD/PFS and how people have recovered

[glennchan]

Let’s collect data on what’s happening to PSSD/PFS patients even if you aren’t experimenting on yourself. I’ve collected data on other chronic illnesses (over 573 responses) and that has generated useful data regarding risky and promising treatments. Please help me do the same for PSSD.

SURVEY LINK: https://docs.google.com/forms/d/e/1FAIp ... forum+.org

For the first question (“What is your chronic illness?”), type in something like “PSSD from ashwaganda” but replace ashwaganda with whatever caused your PSSD. Thank you!!

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Hopefully we get to 200+ responses so that there is meaningful data. The survey takes 5-10 minutes.

Goals: identify promising and risky treatments. See if hierarchical clustering can differentiate between PSSD and other chronic illnesses. See if there are biases between an anonymous survey and the PSSD recovery compilations, which can be found at https://www.longhaulwiki.com/index.php/ ... ry_stories

*I’m not encouraging medical experimentation because treatment turning out badly is how most people ended up here.

** Video summary of my work so far for other chronic illnesses: https://youtu.be/IfeEIWorozg?si=cXkWIKCrq8LaXGRR

*** Data dump of survey results: https://forum.sickandabandoned.com/t/ha ... -fast/228/